Wendy Erler

The Huntington's Disease Society of America is a nonprofit organization dedicated to supporting individuals and families affected by Huntington’s disease, a fatal genetic disorder causing progressive nerve cell breakdown in the brain. The non-profit company is based in New York, NY. The organization provides resources including education on symptoms, stages, genetics, and care management; support groups; social workers; telehealth services; and a network of centers offering clinical care. It funds research to advance scientific understanding and develop treatments, supports researchers through grants and fellowships, facilitates patient participation in clinical trials, and offers continuing education for healthcare professionals. The society emphasizes community engagement through donations, volunteering, advocacy, and events, including youth-focused programs. It also provides caregiver resources, professional training, and promotes physical therapy guidelines.

Operates as a patient data processing platform